To ensure full Corona-times comes from the district of Heinsberg good news: A small sick Boy, whose fate has moved in the last few months, many people, now gets a hoped-for drug, as a district administrator Stephan Pusch said on Friday in his daily Video message to the Corona location. The drug was approved and the insurance company will pay the treatment for the small Ben, told Pusch.
The nearly two million Euro expensive gene therapy drug to the progressive removal of the muscles prevent, but before Ben’s second birthday on 7. November will be administered as stated on the website of the action. “I’m really taken in a bit and really touched that the little guy now has a future,” said Pusch. The parents wrote on Facebook: WE DID IT!!! Speechless!!! Happy!!! Grateful !!!
Although the drug for Europe was not yet admitted, had started the family the fundraiser “Fight with Ben”, in the many clubs and individuals dedicated. A great desire was now fulfilled, said Pusch: “in spite of all the crap we are experiencing now at the time” was Ben looking times in adulthood to the year 2020 and be able to say: “that was The year, where the Heins Berger in great solidarity have helped.” The collected donations were to help the German muscle Foundation and other children. “Aachener Zeitung” and “Aachener Nachrichten” had initially reported.
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