June 10 at No. 125 “the Russian newspaper-Week” published an article, “the Elixir of growth for Lina”, which tells about how Kostroma officials for three years was denied disability-free treatment of a seriously ill girl suffering from growth hormone deficiency.
for Many months the family was pestered bureaucratic offices, trying in vain to prove that the syndrome Shereshevsky-Turner, who suffers from birth baby is among the severe genetic pathologies and that the treatment of such diseases should be paid for by budget funds under the program “Seven high-cost nosologies”. Desperate after a failure, the family Stationery asked for help in “RG”.
the next day after the release of the article “RG” called the girl’s grandmother Elena Belova and shared his joy.
– You can not imagine what our happiness! I left in the morning newspaper, and after lunch we got a call from the pediatric clinic and said that they gave us a free prescription for the drug! Then a phone call from the health Department and said that we would provide a cure. To get it, we need only one time to write the application! We don’t have to run with an outstretched hand and think about how to take a loan for the child’s treatment, said Yelena Belova.
According to her, the first two packs of essential medicines for Lina’s family has already received. This amount of the drug will last until the end of the month. And from July 1, employees of the Department promised to provide the girl the necessary growth hormone regularly.
Now the family Stationery can hope that due to the continuous treatment baby can grow up to desks, and from September 1 next year she will have a chance together with their peers to go to school.
