Experts and leaders of the patient community to discuss how the situation has changed with the treatment of SMA in Russia a year after the appearance in our country of pathogenetic therapy of this disease and what else can help these patients.
Our experts:
Katerina Pogodina – General Director of LLC “Johnson & Johnson”, managing Director of Janssen Russia & CIS;
Elena Belousova – doctor of medical Sciences, Professor, head of Department of Psychoneurology and epileptology research clinical Institute of Pediatrics named after academician Yu. e Veltishev Federal STATE rnsmu.N. And.Pirogov;
Yan Vlasov – President of all-Russian public organization of disabled patients with multiple sclerosis (OOOPS), co-chair of the all-Russian Union of public associations of patients, the head of Council public organizations for protection of patients ‘ rights at the Federal service for supervision in the health sector;
Olga Getmanenko – founder and Director of the Charity Fund “Families of SMA”.
the moderator of the Council of experts – the editor of Department of business application to “RG” Tatiana Bateneva.
questions on the topic of the Council of experts can send mc@rg.ru to 17: 00 on June 28, 2020
