Lily Timergalieva from Kazan suffers from a rare disease characterized by increased fragility of bones, and all life moves in a wheelchair. Such people are called “crystal” – is so fragile their bodies… But despite this, Lily is preparing for the most important event in his life: the birth of a child. She managed to not only get pregnant but to carry the pregnancy. To give birth to Lily arrived in Moscow, is now in the hospital.
“MK” the amazing story of their love.
Lily 33 years, she is known in Kazan, poet and Deputy Director of the charity Fund “Yardem”.
– I Feel fine – she told us. – At the moment I am in one of the leading medical centers of Moscow and preparing to leave. Her husband has remained in Kazan, solves the everyday things. We will pull, as this will allow my health to a child scored the highest possible weight and it was easier for him to be born. To give birth, I will, of course, by caesarean section.
We phoned her husband, Rishat:
– Very worried for a wife, miss, we’re with her all the time, he says. By ultrasound we will have a son, I’m really looking forward to his appearance, will travel to Moscow for Lily and the baby, most likely after the birth. Maybe in two weeks or three it will happen. Believe deliver safely.
– Lily Timergalieva works in the Fund for seven years, says her colleague and friend elder Bayazitov leads courses “Support each other” for wheelchair and holding Midfielders. She is a very determined woman always gets her way. She has absolutely no complexes when it is closer, start talking, I forget about her disease. When she came to us, we really wanted to go to Mecca to perform the pilgrimage. We still wondered how it go there, it’s so hard on the stroller. But she went out, we accompanied her. And there she touched the Holy Muslim Black stone, Allah grant her request. When we went back, I asked her what she had asked of Allah? She said she asked her husband, a healthy husband, with hands and feet. “Because if it be a disease, how we are going to help?”.
And that takes some time, and we see that around our centre carries her in a wheelchair some guy. We thought maybe the volunteer. And she tells us: “No, that’s my fiancé.” And we are increasingly seeing them together. I invited him over to him and asked if he had serious intentions? Because we don’t want to have her feelings played with. He admitted that serious. A few months later they were married. They live very amicably, is an example to all other pairs.
And when we found out that Lily was pregnant, I asked her: “What are you going to do?”. She says I ro��AMB. And despite all the obstacles, all dissuade physicians in the antenatal clinic, she stubbornly defended their pregnancy. Of course, she at first was fear, how to raise a child? But I told her that if that’s the case, then we’ll help her. Find a nanny, etc. the Child needs in no way to be. In our Foundation there is a house of children, where we educate orphans, so are we one child can bring?
…Despite the fact that there was a high probability of transfer of its rare disease “osteogenesis imperfect” child, she and her husband decided to fulfill his dream and give him the chance. At the moment, as demonstrated by ultrasound, the baby is healthy. While Lily and her husband were traveling from Kazan to Moscow on the ambulance, a woman posted on his Facebook page a touching message: “there is quite a bit, and we will see, Inshallah, a new smile, hear a new crying and feel those moments of parenthood. Pray for us, friends! We believe that all for the better.”