This article is over two days old and may contain outdated advice from the authorities regarding the koronasmitten.
Keep yourself updated in The overview, or through the FHIs website.
Klasehodepine can get people to knock his head so hard on the wall that they get a concussion. Some engaged in unconscious self-mutilation, in pure desperation.
Some feel that the head is about to explode. Or that a sword inserted into the eye, and rotates around and around. One of them NRK has talked with, says that she would rather choose a styrtfødsel per day than a seizure.
It is perhaps no wonder that the disease, as approximately 4-5000 norwegians are hit by, called selvmordshodepine.
For some of the patients, is the supply of pure oxygen, the only thing that can curb the seizures and thus reduce the pain. To have a oksygenkolbe at home, is vitally important for them.
the Shock was therefore great when several got the message that the oksygenkolben had to come back.
Read also: To battle against the extreme hodepinesmertene Delivered from oksygenkolben – was admitted to the hospital
Behandlingshjelpemidler is spesialhelsetjenestens body to give the patients the necessary behandlingsutstyr in the home. Patients are entitled to necessary health care for, among other things, to reduce pain.
Several patients subject to Health Bergen received the following SMS from the Behandlingshjelpemidler:
SCREENSHOT: the text message reads: “Health, Bergen ask you to return the loaned oksygenflaske as soon as possible in Solheimsviken 13. The opening hours of the period of 8 to 15 every weekday. Tel. 55974177”.
Photo: Screenshot
Other places to be patients have got similar information, according to the NRK have been informed.
A patient in a different health care was supposedly written requirement to deliver oksygenkolben its already in February. The justification from the regional center for technical aids should have been the economy, but nevrokirurgisk department at the appropriate hospital should not have given any justification.
NRK has confirmed that one patient with klasehodepine has been put into the hospital because of seizures. A seizure patient should have managed to keep at bay if she had not delivered the oksygenkolben.
This is a very troubled patient group. Oxygen is førstelinjebehandling, and it is very important that they have this treatment available, ” says Marte-Helene Birch.
She is consultant in neurology at Haukeland hospital and a board member of the Norwegian neurological association.
According to the superior can be a possible outcome be that the sufferers must be hospitalized without access of oxygen at home.
And especially now, in koronatiden, is it unlucky with unnecessary admissions, ” states Birch.
Health Bergen sorry: Mean sentence fell out from the SMS
Here, there has been a misunderstanding.
So it introduces Gunn Krognes Larsen, head of section for treatment in the Health Bergen, the answer to the NRK.
According to her was the text message to patients with oksygenkolbe worded wrong; that the sentence “bottles not in use” had fallen out.
– This we apologize so much and see that it was a little hastverksarbeid with so many SMS’s and phone calls in a busy time, writes Larsen in the e-mail.
It is previously known that the Norwegian health authorities in connection with the koronakrisen, has asked the municipalities map out where a lot of medical oxygen available in the Uk.
Health Bergen denies that the message to deliver back oksygenkolber has to do with the Covid-19. They say that it is coincidence that the text message was sent out just now.
” We call now to those patients that we see have received a SMS where the sentence has fallen out and explains the misunderstanding. It was not the purpose to take in return oxygen cylinders that are in use.
Erling Tronvik by the National competence center for headache in Trondheim says he is happy that patients are not consciously was encouraged to submit oksygenkolbene.
– It is sloppy to not assure the quality of such a message, in any case, when it can have therapeutic consequences. But mistakes can happen and it must take account of.
Screams of pain many times a day
For some hodepinepasienter does not work oxygen supply on the extreme pain. Around 250 people will receive a unique botox treatment at the National centre of excellence for headaches at St. Olavs hospital as a part of their research.
Also these patients are very frustrated now.
Thor Gundersen from Elverum has a nerve damage that provides a constant headache, and what he speaks of as extreme seizures six to eight times daily.
When I’m lying on the couch and just scream. I must shut all of the doors and windows so no neighbors to hear me. But they hear anyway, ” says the otherwise spry 87-year-old.
The only thing that really helps him, is the botox treatment. But because of the koronapandemien is this type of planned treatment among the offers will lapse.
It means that Gundersen must run to Rikshospitalet university hospital in Oslo twice a week for a treatment that does not have near the same effect.
PAIN: Thor Gundersen (87) tells about the cruel hodesmerter when he did not receive treatment at nevroklinikken at St. Olavs hospital.
Photo: Anne Hege Aamodt – Hodepinepasienter is easily the losers
Neurologist and director Anne Hege Aamodt processes including Gundersen. She is worried that it now is many patients with chronic disorders such as poorer health care.
– And hodepinepasienter, who have invisible health problems, is easily the losers in a state that now, believe Aamodt.
According to international guidelines and migreneundersøkelser, need 666.000 norwegians health care because of headache. Aamodt fear that hodepinepasienter will go under the radar for a long time.
– We are concerned that people with chronic diseases get a worsening when the number of possibilities for follow-up is inferior, and that these forverringene can’t be reversed, ” she says.
More about koronaviruset StatusRåd and infoSiste nyttSpør NRK
